Living with Ulcerative Colitis
Ulcerative Colitis is no walk in the park, but with the right management strategies and support, you can navigate through it like a pro.
Hey there, fellow warriors of the gut! Today, we’re diving into a topic that’s as real as it gets—living with Ulcerative Colitis (UC).
What is Ulcerative Colitis?
While the name itself is quite a mouthful, the condition is actually more common than you may think. Let’s start with the basics. UC is a chronic inflammatory bowel disease that loves to mess with your colon and rectum. It brings along inflammation, ulcers, and a bunch of not-so-fun gastrointestinal symptoms.
While the exact cause of UC remains unknown, factors such as genetics, an overactive immune system, and an imbalance of gut bacteria are thought to play a role. Stress and certain dietary factors may also contribute to flare-ups in some individuals.
UC can hit everyone differently, from mild to “oh-my-goodness-this-is-intense” severity. Look out for stuff like abdominal pain and cramping. It can range from a little twinge to a full-blown “why-me?” level of pain. And oh boy, the diarrhoea! Frequent trips to the restroom with loose, watery stools and an urgent “gotta-go-now” feeling.
You might also notice some rectal bleeding, which is never a good sign.
And let’s not forget about the weight loss and fatigue that can tag along, thanks to the ongoing immune response in your body. Feeling like a pale-skinned vampire, anyone? Plus, loss of appetite can make mealtime a real bummer. Seriously, UC is a party pooper!
6 Signs and Symptoms Of Ulcerative Colitis At A Glance
- Abdominal pain and cramping: Individuals with UC may experience abdominal discomfort, ranging from mild to severe pain. Cramping can be intermittent or persistent.
- Diarrhoea: Frequent bowel movements with loose, watery stools are common symptoms. The urgency to use the restroom may be intense, often accompanied by the inability to control bowel movements.
- Rectal bleeding: Blood in the stool or on toilet paper is a significant sign of UC. The severity can range from minimal to severe bleeding.
- Weight loss and fatigue: Chronic inflammation and malabsorption can lead to unintentional weight loss. Fatigue and a general feeling of tiredness may also accompany UC due to the body’s ongoing immune response.
- Anaemia: Frequent rectal bleeding can result in iron deficiency anaemia, leading to weakness, pale skin, and shortness of breath.
- Loss of appetite: Many individuals with UC experience a decreased appetite due to ongoing gastrointestinal symptoms, which can lead to inadequate nutrition.
Treatment Options for Ulcerative Colitis
The management of Ulcerative Colitiis typically involves a combination of medical therapy, lifestyle modifications, and, in some cases, surgery. The main goals of treatment are to control inflammation, relieve symptoms, and promote long-term remission.
Here are some common treatment options for Ulcerative Colitis:
Medications
Anti-inflammatory drugs, such as aminosalicylates and corticosteroids, are often prescribed to reduce inflammation and manage symptoms. Immunomodulators may also be used to suppress the immune response.
Dietary changes
While diet alone cannot cure UC, some modifications can help manage symptoms. Avoiding trigger foods, such as spicy or high-fibre foods, and maintaining a well-balanced diet can be beneficial.
Lifestyle modifications
Stress management, regular exercise, and adequate sleep can contribute to overall well-being and help reduce UC flare-ups.
Ostomy Bags and Ostomy Care
Surgery may be necessary in severe cases of Ulcerative Colitis where medical therapy fails to provide relief. One common surgical procedure is an ostomy, which involves creating an opening in the abdomen (stoma) through which waste products can be eliminated. An ostomy bag, also known as a pouch, is then attached to the stoma to collect the waste.
Living with an Ostomy: Adapting to Change
Adjusting to life with an ostomy as a result of Ulcerative Colitis can be challenging both physically and emotionally. However, individuals can lead fulfilling lives with time, education, and support. Here are a few essential aspects of living with an ostomy:
Education and support
Receiving proper education and support from healthcare professionals and ostomy support groups can make a significant difference. Learning about ostomy care, hygiene, and understanding that you are not alone can help alleviate anxiety and uncertainty.
Ostomy care
Regular stoma and ostomy bag care are vital to prevent infections and maintain skin health. Cleaning the stoma, changing the pouch regularly, and using appropriate supplies and accessories are essential for ostomy care.
Body image and self-acceptance
Adjusting to the physical changes an ostomy brings can impact body image and self-esteem. It’s important to remember that an ostomy is not a limitation but a life-saving measure. Engaging in open conversations about body image, seeking counselling if needed, and connecting with others who have gone through similar experiences can foster self-acceptance and boost confidence.
Clothing and fashion
Many individuals wonder about clothing options after ostomy surgery. The good news is that there are numerous clothing choices available that can accommodate ostomy bags discreetly. Companies such as VERA SA offer specialised underwear for ostomates that provide comfort, security, and the ability to dress confidently.
Diet and hydration
While dietary restrictions may vary from person to person, individuals with an ostomy can generally maintain a normal diet. However, it’s essential to stay hydrated and be mindful of foods that may cause blockages or gas. Chewing food thoroughly and incorporating various nutrient-rich foods can help maintain a balanced diet.
Physical activity and exercise
An ostomy should not deter individuals from engaging in physical activities. With proper care, individuals can participate in swimming, yoga, weightlifting, and even contact sports. It’s important to consult with a healthcare professional or an ostomy nurse to ensure that the chosen activities are suitable and won’t cause discomfort or damage to the stoma.
Emotional well-being
Living with an ostomy can bring about a range of emotions, including anxiety, sadness, and frustration. It’s crucial to prioritise emotional well-being by seeking support from loved ones, joining support groups, or seeking professional counselling. Developing coping mechanisms, such as practising mindfulness, meditation, or hobbies, can also contribute to a positive mindset.
And that’s a wrap, folks!
Ulcerative Colitis is a challenging condition that can significantly impact the quality of life. However, with the right management strategies and support, individuals can effectively manage their symptoms and find ways to adapt to life with an ostomy.
Always remember, seeking medical guidance, educating oneself about the condition, and connecting with others with similar experiences are crucial steps toward living a fulfilling life with UC and an ostomy. Most importantly, know that you are not alone, and support is available to help you navigate this journey with confidence and resilience.
Vera SA is a proud partner of CANSA and The South African Society of Ostomates.
Contact VERA SA at 082-833-9200, email info@verasa.store, or log onto
https://www.verasa.store/ for more information.
READ MORE BLOGS BY VERA SA:
HOW TO REDUCE OSTOMY GAS AND ODOURS
REPLACE YOUR COLOSTOMY BAG IN A FEW EASY STEPS
THE PROS & CONS OF DISPOSABLE OSTOMY BAGS
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